- Hunter's Hope
Foundation set up by Buffalo Bills quarterback, Jim Kelly, and his wife, Jill, after their son, Hunter, was diagnosed with Krabbe Leukodystrophy. Includes information on the disease and current research.
www.huntershope.org
- NINDS: Krabbe Disease Information Page
Fact sheet on the rare, inherited degenerative disorder of the central and peripheral nervous systems. From the National Institute of Neurological Diseases and Stroke (NINDS).
www.ninds.nih.gov/disorders/krabbe/krabbe.htm
- Krabbe's Kids
Information and links for families.
www.krabbes.com
- Genetics Home Reference: Krabbe Disease
Offers diseases description, genetic changes, treatment, and online resources about Krabbe disease.
ghr.nlm.nih.gov/condition=krabbedisease
- MedlinePlus Medical Encyclopedia: Krabbe Disease
Fact sheet on the inherited disorder, also known as globoid cell leukodystrophy, in which the deficiency of an enzyme causes the death of a child's brain cells.
www.nlm.nih.gov/medlineplus/ency/article/001198.htm
- eMedicine: Krabbe Disease
Clinical overview of the disease with sections on differentials, treatment, and follow-up care.
www.emedicine.com/ped/topic2892.htm
- GeneReviews - Krabbe Disease
Disease overview, diagnosis, clinical description, testing, genetic counseling, and related resources. From the National Center for Biotechnology Information (NCBI) bookshelf.
www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book=gene∂=krabbe
- About.com: Krabbe Disease
About the inherited disease, its types, symptoms, diagnosis, and treatment possibilities.
rarediseases.about.com/cs/krabbedisease/a/020104.htm
- UMM: Krabbe Disease
Overview, causes, symptoms, risk factors, and treatment of the rare genetic disorder of the nervous system. From the University of Maryland Medical Center.
www.umm.edu/ency/article/001198.htm
- Wikipedia: Krabbe Disease
User-edited article about Krabbe's disease, a rare degenerative disorder that affects the nervous system.
en.wikipedia.org/wiki/Krabbes_disease
- Drugs.com: Krabbe Disease
Medical information about the rare genetic disorder of the nervous system, which is also a type of leukodystrophy.
www.drugs.com/enc/krabbe-disease.html
- MedicineNet: Fighting Krabbe's Disease With Jim Kelly
Transcript of an interview with Jim Kelly, the former Buffalo Bills quarterback, discussing the management of Krabbe's disease which affected his son.
www.medicinenet.com/script/main/art.asp?articlekey=54315
- Betsy's Story
Story and pictures of Betsy Alyn Taft, the infant who suffered Krabbe disease before succumbing to it.
www.4betsy.com
- Haleys' Hope
One family's experience with Krabbe's disease. Includes information and helpful hints.
www.krabbes.com/haleys_hope
- Patient UK: Krabbe's Disease
Features aetiology, diagnosis, and management of Krabbe disease, the inherited autosomal recessive condition which is often fatal, affecting the central and peripheral nervous system.
www.patient.co.uk/showdoc/40001791
- Globoid-Cell Leukodystrophy (Krabbe Disease) and Transplant
Patient information about the life threatening globoid-cell leukodystrophy (GLD), the inherited metabolic storage disorder which affects the muscles, vision, and mental abilities. From the National Marrow Donor Program.
www.marrow.org/PATIENT/Undrstnd_Disease_Treat/Lrn_about_Disease/Metabolic_S...
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